Wednesday, May 11, 2011

~ Jesus Take the Wheel~

Well~~ Yesterday was the day of all my Tests
 Alex and I got to the hospital about 8 am tuned in my 24 urine and waited for my blood work. They took abut 15 tubes of blood, she said that was just a little compared to some people:) Next we went across the street to the Robert's building for my ultrasound, We met Granny & Pappy( my parent's) in the lobby. By this time I was starving:( We had to check in and the lady goes, your having a transplant right? and Alex goes No! and I said Yes! I looked at him and he goes, well I though she meant like a major transplant, like a heart or something :( I think that was the first time he realized how serious this was. They took my back to a room and did the ultrasound and UNOFFICIALLY she told me I had Amyloid on my heart, thats why it was so thick, but I would have to wait and see what the Doctor said. We grabbed a quick sandwich and headed upstairs to the Pulmonary Function Test. That was weird, I had to blow in a machine hooked to a computer, they had a nose clip on my nose. I did three of those, then they squirted some kind of mist stuff in my throat and I had to do it all over again.. She said it was only and 8% difference what ever that means?? Next stop the Hamilton Heart Hospital, for an echocardiogram I thought they were going to give me shots in my heart?? NO... they put these little stickers on my chest and hooked me up to some wires coming from a computer. Then, she had a deal she rubbed around my chest and it took pictures of my heart, it was no big deal at all.. Yay!! It's 1 pm and finally lunch time, they really have some good food in the Cafe. Alex ate there a lot back in July. We went and met with my  social worker ~Shannon~ Everyone got to come and ask questions. She gave me some advice, she said if people wanted to help me to let them, like fundraisers and stuff, that it makes them feel better:) I never thought about it like that. She said I should take any money and donations that people offer or that are out there to get, whether I need them or not, because that is what they are for. Last was the Bone marrow Biopsy :( It wasn't that bad, I had one back in July. They gave me the choice of having some relaxing "funny" medicine through and IV .. Alex said, "Yes, she wants that!!"they had to put in an IV the first nurse heated my veins with a heating pad, she had read that I was a "hard stick" Well she blew my vein:(   then the head nurse manager came in bragging how she never missed .. She had done this for 25 years.. She blew my vein :( she also didn't wear gloves?? I thought that was really strange and  Alex asked her. She said, "Oh~ I learned along time ago, you have to be able to feel the veins, you learn who to watch out for." HELLO??? I have a blood disease. ok anyway.. She got it on the 3rd try. They had me lay on a table/bed. My parents had went home, so Alex got to stay with me. They gave me some medicine, I didn't feel any different?? then they started giving me deadening shots in my back hip bone. It was that bad. then they popped out a piece of my bone and got the marrow, it had this very strange uncomfortable feeling, but it didn't really hurt. ( I need to remember this) Then I was Done!! Yay, now the waiting begins for all my test results. I met with Dr Agura May 18, 2011 to find out results and sign consent forms. I'm excited:)

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