~ Can't Sleep~

I can’t sleep … Imagine that .. It’s Thursday 10:57 PM Alex is laying here snoring awayJ I really need to sleep I have a long day ahead of me.

Yesterday the teachers at school gave me a celebration dayJ I work with the most AWESOME people. They had breakfast & lunch and baskets full of all kinds of things for the Hospital; they decorated the hall and made a big banner that they all signed. They really surprised me.. I am so blessed to work with each and every one of them. Mrs. Hughes took pictures and I will post them on facebook when I get them. My student’s brought me flowers and we just cried a lot. Jasmine painted my fingernails hahaha I was gonna take it off when I got home but I just haven’t gotten around to it yet. I had a wonderful day.

I can really tell I am off the Velcade/Chemo, It’s only been 3 weeks and I am getting so tired so fast. I am having problems breathing, and starting to retain fluid again. Its CRAZY how fast this disease works on my body. Hopefully the SCT will be my answerJ

This morning we got up and took Lucas to school, I went by my class and got some papers I needed and hugged a few of my friends and we were headed to Baylor. We were going through an transplant orientation class. They gave me a binder full of stuff last week and I read it front to back…. WELL.. that is what the class was about .. ugggg I could have taught it myself. Alex & I could barely stay awake. There were 3 other groups of people in the class, who are getting transplants. One was an older man, One was a lady who looked about 55 and one looked about my age, she already had a wig on. She is going through chemo right now, maybe she lost her hair during that. It made me kinda sad~~ I saw some other ladies, wearing caps and they were bald….they looked like they could care less. I hope that’s how I feel.. but I seriously doubt it… I will probably be trying to glue hair to my hat or something hahahah .. I know-I know it will grow back.. The Nurse said most people go ahead and cut their hair off real short before being admitted, because when it starts to fall out it goes everywhere……….. Well DARN its 11:15 PM and I forgot to get mine cut J I guess I will just have to wait till it falls out. They said its about 10 days after you get the Strong dose of chemo that it falls out… So I guess I will wake up with a fur ball one morning. I remember when I first got sick and started Chemo, my hair was really long and thick, and it came out  by the handfuls in the shower, but I was never totally bald, I just had REALLY thin hair. I just wish I wasn’t so worried about my hair. I think its because .. that’s when the truth will come out and I will no longer be able to hide how sick I am L Maybe I just need to quit worrying about anything. I know its all going to be fine, and that God is going to take care of everything J

So we got to come home, because they haven’t put my port in yet. So…….. I went and got a pedicure.. Alex had them watching NASCAR before we got out of there. When I got home I heard the BAD news that my Beautiful Aunt Bev passed away. My daddy’s big sister, who lives in California. She was 77 and not even sick.. She was upstairs getting ready to go bowling and she died. It breaks my heart to see my Daddy cry.. I’m glad my Aunt didn’t ever have to suffer, she lived a good life and we will miss her greatly… Later my whole Family met at Cotton Gin in Crandall to eat … it was great to visit with them. (Thanks for dinner Lisa) Chelle lent me her Kindle to use while I am in the hospital and gave me the cutest slippers with Bees on them and iphone holder.. I love it!!! I also got to see my old friend Sheri parker from High School, she was in there eating with her familyJ

Ok I’m getting tired now… plus I can’t eat anything after midnight so I better go to bed.

This is the email from my nurse about what will go one tomorrowJ

First, check in through AM admitting for the surgery to place the Neostar catheter.  (remember, nothing to eat or drink after midnight prior to surgery.)  From recovery you will go to your hospital room (telemetry floor for heart monitoring—not 6 Roberts).  The Neupogen injections will begin on Friday and continue until you have completed the stem cell collection.  The stem cell collection will begin on Tuesday, May 31 (since Monday is Memorial Day and apheresis and the processing lab are closed that day we cannot begin the collection until Tuesday).  Once we know that you have collected adequate numbers of stem cells, I’ll request the transplant/chemotherapy orders and we’ll proceed into transplant.







My Family @ Cotton Gin In Crandall